Surfer Jacob Venditti Lives Fearlessly with CF

Surfer Jacob Venditti Lives Fearlessly with CF

The Live Fearlessly Foundation? It’s the creation of Jacob Venditti. Jacob is a surfer and lover of life. He's also a social impact entrepreneur, community builder, multimedia producer, keynote speaker, and passionate advocate for the cystic fibrosis community. He also has CF. Jacob was on the transplant list, with a lung function of 15 percent, then he was given the latest CF modulator and his lung function jumped up to 50 percent. He has no need for a transplant at this time. He is proud to say he has not been hospitalized in three years.

Jacob recently launched a new initiative to fill the need for pancreatic enzymes and multi-vitamins to people with CF in countries without the resources to acquire these basic CF needs. With the help of doctors 13 prescriptions have been written, several doctors and hospitals have reached out to him, and a 6-month supply of pancreatic enzymes have made it to the hands of 3 very sick underweight patients in Tunisa. Jacob relentlessly pursues and embodies self-transformation as a way of being and shares that with everyone he meets. He emphasizes the power of ‘showing up’ for us and others, and points to the reservoir of courage, wisdom, and humor that is self-revealing in the adversity of our everyday lives. A devotee of non-duality, Jacob blends a bold and adventurous personality with a grounded presence that honors the beauty in our divine nature and celebrates the precious gift of life.

The Bonnell Foundation website: https://thebonnellfoundation.org

Bonnell Foundation email: thebonnellfoundation@gmail.com

To reach Jacob: jacob@livefearlesslyfoundation.org

Instagram: @livefearlesslyfoundation

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Episoder(208)

The Anomaly: living off donated organs and dark humor by Inka Nisinbaum

The Anomaly: living off donated organs and dark humor by Inka Nisinbaum

What would you do if you didn't know what your future held? For people living with cystic fibrosis, uncertainty is often a constant companion. Inka Nisinbaum faced one of the biggest unknowns of her l...

27 Jul 47min

Ireland's Rising Golf Star, David Howard, who happens to have CF

Ireland's Rising Golf Star, David Howard, who happens to have CF

Luck of the Irish.   Irish international amateur golfer David Howard  doesn't seem to need luck with all the talent he has. We had an inspiring conversation about chasing big dreams while living with ...

20 Jul 44min

CF Scholars: Stories of Determination

CF Scholars: Stories of Determination

Dreams and Determination: Meet four Inspiring students, Living with cystic fibrosis. One of the greatest joys of The Bonnell Foundation is helping young adults living with cystic fibrosis pursue their...

13 Jul 53min

Turning family loss into hope: Kate O'Donnell's story

Turning family loss into hope: Kate O'Donnell's story

I thoroughly enjoy doing my podcasts. It’s the one thing I truly miss from my television news reporting days — interviewing extraordinary people every single day. Through The Bonnell Foundation, I now...

6 Jul 44min

Jon Gay on Radio, Podcasting, and the Art of Storytelling

Jon Gay on Radio, Podcasting, and the Art of Storytelling

Jon Gay and I had a great time recording this podcast because we not only talked about podcasting, but also reflected on our years in the broadcast business and what people should know before starting...

29 Jun 48min

Running changed and saved her life - Katie O'Grady inspires

Running changed and saved her life - Katie O'Grady inspires

"Many people have their own thing that lights them on fire, for me, it's running" say Katie O'Grady.  CF modulator drugs changes are a game changer for people living with cystic fibrosis. Katie O’Grad...

22 Jun 38min

Final Breath, First New Life: Jillian’s Transplant Journey

Final Breath, First New Life: Jillian’s Transplant Journey

“Take in your final breath before your first new one.”  Those were the words Jillian heard before her double lung transplant—words that would mark the end of one life chapter and the beginning of anot...

15 Jun 26min

Rare, But Not Invisible: Chrisy and Dr. Kingzett talk advocacy.

Rare, But Not Invisible: Chrisy and Dr. Kingzett talk advocacy.

Chrisy and Dr. Kingzett, two women I met when we were all trying to raise our rare voices a little louder. Christine “Chrisy” Klavitter and Dr. Kristen Kingzett are both rare disease advocates, but mo...

8 Jun 58min

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