Lichen Sclerosus Podcast

Lichen Sclerosus Podcast

Our journal of learning about and living with Lichen Sclerosus from a patient's point of view. Bringing community and awareness to a disorder that hardly anyone knows about. Join me as I research Lichen Sclerosus from every angle and share my struggles living with it. My hope is to build a community of survivors so we can affect change in our lives and the research.

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Episoder(73)

Pull Back Your Power with Dr. Anne Whitehouse

Pull Back Your Power with Dr. Anne Whitehouse

Has LS taken over most of your waking thoughts? Does it have you questioning your womanhood or sex appeal? Has it made you feel less than? Then you need to listen to this episode. This week I speak wi...

8 Aug 202037min

Listen to Your Body

Listen to Your Body

This week I went off script and had a frank talk about what's been going on with me. It's so important to listen when your body is telling you to slow down or something is wrong. Hopefully, I will be ...

1 Aug 202015min

Lou's Diagnosis Story

Lou's Diagnosis Story

Our sister in Lichen Sclerosus, Lou from Australia, shares her diagnosis story with us. Her trials with everything from doctors to mental health. Be prepared to smile and laugh because we had fun. And...

24 Jul 202034min

Do you need a support group?

Do you need a support group?

This week we dive into support groups. Why you may need one? Why they are important and what to look for in the right support group for you? I'll also introduce you to two Facebook support group admin...

18 Jul 202023min

LS Clinical Trials with Leia Michell

LS Clinical Trials with Leia Michell

Leia Mitchell and I are back with the second part of our conversation. This week we discuss clinical trial research around Lichen Sclerosus. Leia tells us where the research is on LS mental health as ...

10 Jul 202029min

Not in a good place

Not in a good place

Hey. It's been a tough time lately and I can't be of service to you the way I want to so I will be taking some time off. I hope to be back reinvigorated. If you would like to keep in touch you can fol...

12 Jun 20207min

Does Using Your Voice Really Work?

Does Using Your Voice Really Work?

This is the hardest episode I have ever recorded. It's raw and barely edited. It is needed. Please please please listen to this message. It is so important. After you listen tell me does using your vo...

4 Jun 202042min

The State of Lichen Sclerosus Today with Leia Mitchell

The State of Lichen Sclerosus Today with Leia Mitchell

Ever wonder what's going on with Lichen Sclerosus today? With all the different perspectives and voices what does the science say? I speak with Leia Mitchell a clinical research coordinator, medical s...

29 Mai 202036min

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