Lichen Sclerosus Podcast

Lichen Sclerosus Podcast

Our journal of learning about and living with Lichen Sclerosus from a patient's point of view. Bringing community and awareness to a disorder that hardly anyone knows about. Join me as I research Lichen Sclerosus from every angle and share my struggles living with it. My hope is to build a community of survivors so we can affect change in our lives and the research.

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Episoder(73)

What Can We Learn From Breast Cancer Awareness?

What Can We Learn From Breast Cancer Awareness?

I recorded this on World Voice Day. I decided to use my voice to tell you my mission and hope you join me. Please listen all the way through because this is a very important message. I hope you join t...

17 Apr 202022min

What if my medicine stops working?

What if my medicine stops working?

What would you do if your topical corticosteroid stopped working? I mean think about. Remember how it felt when you first noticed something was off with your vulva. The uncertainty that crossed your m...

11 Apr 202018min

How to have BETTER sex even though you have Lichen Sclerosus.

How to have BETTER sex even though you have Lichen Sclerosus.

Just a quick warning, I will be talking about sexual things. If you are sensitive to that I completely understand but this may not be the blog for you. For complete show notes and links to resources v...

4 Apr 202034min

Should We Be Worried?

Should We Be Worried?

Covid-19 aka coronavirus has turned our world upside down. So I went searching to see what people in the online communities were saying about it. Some had questions and concerns about our risk as Lich...

24 Mar 202010min

10 Tips To Destress and Reduce Lichen Sclerosus Flareups

10 Tips To Destress and Reduce Lichen Sclerosus Flareups

Does stress cause Lichen Sclerosus flareups? The effects of stress on LS have not been researched. However, my personal experience is that they are connected. Other women in public forums have also as...

16 Mar 202029min

The Worst Symptoms of Lichen Sclerosus

The Worst Symptoms of Lichen Sclerosus

Lichen Sclerosus affects everyone differently. Each person can have a different variety of symptoms or no symptoms at all. This week I tell you about the common, severe and secondary symptoms I learne...

8 Mar 202018min

My Lichen Sclerosus Diagnosis

My Lichen Sclerosus Diagnosis

Lichen Sclerosus is often misdiagnosed many times before it is finally correctly diagnosed and treated. This can lead to frustration, disappointment, and worsening symptoms. Unfortunately, this is wha...

28 Feb 202029min

The Lichen Sclerosus Manifesto

The Lichen Sclerosus Manifesto

February is Vulval Health Awareness Month, Vulvuary! In celebration, I give you some stats and introduce you to the Association for Lichen Sclerosus and Vulval Health (ALSVH). We take a look at the Li...

21 Feb 202019min

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