Living With Cystic Fibrosis

Living With Cystic Fibrosis

Living with cystic fibrosis: the challenges and triumphs along the way. Live-Breathe-Inspire

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Episoder(208)

Laura Varon Brown

Laura Varon Brown

Former Detroit News reporter, Laura Varon Brown talks to The Bonnell Foundation about losing her Detroit News photojournalist husband, Jim, too cystic fibrosis.In this podcast Laura Varon Brown talks ...

13 Jun 202237min

Geneticist, Amy Gaviglio talks CF

Geneticist, Amy Gaviglio talks CF

Cystic Fibrosis is not a disease that only impacts white people,  but for years and years, it’s been treated that way.  Now thanks to organizations like The National Organization of African Americans ...

6 Jun 202237min

Dr. Johanna Zea-Hernandez

Dr. Johanna Zea-Hernandez

The Bonnell Foundation continues to raise awareness about cystic fibrosis and that anyone can be born with CF. Dr. Johanna Zea-Hernandez, pediatrician Pulmonologist in Grand Rapids. She Universidad Na...

30 Mai 202236min

CF in Canada with Beth Vanstone

CF in Canada with Beth Vanstone

Cystic Fibrosis awareness month continues with today's show. In this episode, Host Laura Bonnell is joined by frequent podcast collaborator Beth Vanstone.  Beth, a Canadian talks about the state of he...

23 Mai 202243min

Lost Women of Science

Lost Women of Science

I was on a zoom conference, I was bored. it was about using my zoom account, so it wasn’t extremely engaging.  I continued to listen while I wandered away from the conference and was looking on the zo...

16 Mai 202235min

Musician, Influencer, and Business Architect Marc Cotterill

Musician, Influencer, and Business Architect Marc Cotterill

Marc Cotterill is a CF rock star if you ask me.  He is from the United Kingdom, and has cystic fibrosis. Marc recently turned 40 years old. I love his Instagram presence because he is wonderfully dire...

9 Mai 202251min

CF pioneer, program coordinator, Dee Aquazzino

CF pioneer, program coordinator, Dee Aquazzino

To honor pioneers in CF during May, CF Awareness Month we are showcasing this pioneer.  Dee Acquazzino was Pediatric Clinic Program Coordinator for 44 years as the CF at the Nebraska Regional CF Cente...

2 Mai 202251min

Ukraine refugee and CF Mom Kateryna Koval's story

Ukraine refugee and CF Mom Kateryna Koval's story

This is the story of one Ukraine family escaping war to save their daughter Anna, who has CF.  Kateryna, husband Andrew and 4 year old daughter Anna were awakened by the sounds of bombing at 5:00am in...

28 Mar 202244min

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