Living With Cystic Fibrosis

Bike to Breath is coming up quickly (Monday the 21st of September through Friday the 25th).  Two friends of the Bonnell Foundation, and the CF Community are getting on their bikes and riding from Bost...

18 Sep 202025min

Beth Vanstone talks about how a CF diagnosis thrust her into the world of advocacy.  The two Moms (Laura and Beth) quickly find they have so much in common, from victories to challenges, even though t...

10 Sep 202041min

Laura Bonnell (Detroit), Kat Porco (Montana), Jen Caruso (Delaware) and Siri Vaeth (California) have have 5 children with cystic fibrosis between them. The kids are ages 14 to 25 years old.  This CF T...

15 Mai 202048min

I am so proud to bring you our CF partners from around the Country, (Siri Vaeth, CFRI, Inc., Lee Becker and Jerry Cahill, Boomer Esiason Foundation, Brian Callanan, CFLF and Emily Schaller, Rock CF Fo...

8 Mai 202046min

The reason the Bonnell Foundation began was because I had two daughters with cystic fibrosis. This episode is my girls perspective. They live life to the fullest.  They both traveled to Nicaragua for ...

1 Mai 202027min

When you think about cystic fibrosis, you probably think about the patient, and the parents who take care of them until they're adults.  But what about a patient's spouse or partner? When a person sta...

3 Mar 202015min

Resources:Translate Bio WebsiteThe Bonnell FoundationEmail The Bonnell Foundation Like, subscribe, and comment on our podcasts!Please consider making a donation: https://thebonnellfoundation.org/donat...

21 Des 201912min

Resources:The Bonnell FoundationEmail The Bonnell FoundationMichigan Department of Health and Human Services   Like, subscribe, and comment on our podcasts!Please consider making a donation: https://t...

9 Des 201922min