Angelman Syndrome Foundation Podcast

Angelman Syndrome Foundation Podcast

Welcome to the Angelman Syndrome Foundation community! In each episode, Amanda Moore, CEO of Angelman Syndrome Foundation, will discuss Angelman syndrome with experts in their field to provide resources and education to families. From a deep dive into the genetics of Angelman syndrome, to understanding clinical treatments for treating seizures to discussions with IEP specialists and communication specialists, we are here to help as many families as possible on this journey. We are so glad you have joined us and look forward to connecting and supporting this community together.

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Avsnitt(42)

Rest Assured: Safe Sleep for Angelman Families

Rest Assured: Safe Sleep for Angelman Families

Share Your Feedback or Recommend New Topics Tired nights, travel challenges, and endless insurance hurdles... sound familiar? In this episode, guest host Liz Thompson, Development Director at ASF, tal...

10 Okt 202533min

Planning for the Future: ASF Housing Champions Share Their Journeys

Planning for the Future: ASF Housing Champions Share Their Journeys

Share Your Feedback or Recommend New Topics In this episode, guest host Kathryn Ely, ASF's Family Resource Director, leads a candid discussion with ASF’s Adult Housing Champions, a group of parents an...

8 Sep 20251h 6min

Inspired Careers: Siblings and Relatives Share Their Journeys

Inspired Careers: Siblings and Relatives Share Their Journeys

Share Your Feedback or Recommend New Topics In this ASF podcast episode, guest host Chloe Knouff brings together siblings and relatives of individuals living with Angelman syndrome to explore how thei...

27 Aug 202549min

Talking Toileting with Dr. Colin Muething

Talking Toileting with Dr. Colin Muething

Share Your Feedback or Recommend New Topics Toileting is one of the most common (and often most challenging) milestones for individuals with Angelman syndrome. In this episode, Dr. Colin Muething, Dir...

13 Aug 202557min

The History of Disabilities with Hannah Oppenheim

The History of Disabilities with Hannah Oppenheim

Share Your Feedback or Recommend New Topics In this episode of the ASF Podcast, CEO Amanda Moore welcomes Hannah Oppenheim, a neurodevelopmental disability fellow, to discuss the history of disability...

26 Feb 202541min

An Interview with "Out of My Mind" Director, Amber Sealey

An Interview with "Out of My Mind" Director, Amber Sealey

Share Your Feedback or Recommend New Topics In this episode of the ASF Podcast, CEO Amanda Moore speaks with filmmaker Amber Sealey about her Disney+ film Out of My Mind, which highlights the journey ...

11 Feb 202526min

Genetics 101

Genetics 101

Share Your Feedback or Recommend New Topics In this episode of the ASF podcast, recorded at the 2024 ASF Family Conference, Dr. Rebecca Burdine unpacks the genetics of Angelman syndrome, focusing on t...

22 Jan 202553min

Intensive Therapy: Bryan LaScala and the NAPA Center

Intensive Therapy: Bryan LaScala and the NAPA Center

Share Your Feedback or Recommend New Topics In this episode, CEO Amanda Moore is joined by Bryan LaScala, CEO of the NAPA Center. Bryan shares the inspiring story of how his mother’s determination to ...

8 Jan 202537min

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