Angelman Syndrome Foundation Podcast

Angelman Syndrome Foundation Podcast

Welcome to the Angelman Syndrome Foundation community! In each episode, Amanda Moore, CEO of Angelman Syndrome Foundation, will discuss Angelman syndrome with experts in their field to provide resources and education to families. From a deep dive into the genetics of Angelman syndrome, to understanding clinical treatments for treating seizures to discussions with IEP specialists and communication specialists, we are here to help as many families as possible on this journey. We are so glad you have joined us and look forward to connecting and supporting this community together.

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Avsnitt(38)

The History of Disabilities with Hannah Oppenheim

The History of Disabilities with Hannah Oppenheim

Share Your Feedback or Recommend New Topics In this episode of the ASF Podcast, CEO Amanda Moore welcomes Hannah Oppenheim, a neurodevelopmental disability fellow, to discuss the history of disability...

26 Feb 202541min

An Interview with "Out of My Mind" Director, Amber Sealey

An Interview with "Out of My Mind" Director, Amber Sealey

Share Your Feedback or Recommend New Topics In this episode of the ASF Podcast, CEO Amanda Moore speaks with filmmaker Amber Sealey about her Disney+ film Out of My Mind, which highlights the journey ...

11 Feb 202526min

Genetics 101

Genetics 101

Share Your Feedback or Recommend New Topics In this episode of the ASF podcast, recorded at the 2024 ASF Family Conference, Dr. Rebecca Burdine unpacks the genetics of Angelman syndrome, focusing on t...

22 Jan 202553min

Intensive Therapy: Bryan LaScala and the NAPA Center

Intensive Therapy: Bryan LaScala and the NAPA Center

Share Your Feedback or Recommend New Topics In this episode, CEO Amanda Moore is joined by Bryan LaScala, CEO of the NAPA Center. Bryan shares the inspiring story of how his mother’s determination to ...

8 Jan 202537min

Epilepsy in Angelman Syndrome

Epilepsy in Angelman Syndrome

Share Your Feedback or Recommend New Topics In this episode, Dr. Mark Nespeca lays the groundwork by identifying and explaining the types of seizures commonly seen in individuals with Angelman syndrom...

17 Dec 202459min

Food is Medicine

Food is Medicine

Share Your Feedback or Recommend New TopicsPeople with Angelman syndrome demonstrate a higher than average response to dietary therapy. This podcast provides a better understanding of what dietary the...

10 Dec 202437min

Decision Fatigue to Peace with Lisa Jamieson

Decision Fatigue to Peace with Lisa Jamieson

Share Your Feedback or Recommend New Topics Angelman mom, Lisa Jamieson from Walk Right In Ministries, a faith-based organization that supports caregivers, joins CEO Amanda Moore to discuss Lisa's per...

26 Nov 202442min

Travel Tips

Travel Tips

Share Your Feedback or Recommend New TopicsGuest hosts AJ and Chloe Knouff are joined by Haily Green of Wondermakers Travel. They talk all things travel including planning, special considerations and ...

13 Nov 202430min

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