Angelman Syndrome Foundation Podcast

Angelman Syndrome Foundation Podcast

Welcome to the Angelman Syndrome Foundation community! In each episode, Amanda Moore, CEO of Angelman Syndrome Foundation, will discuss Angelman syndrome with experts in their field to provide resources and education to families. From a deep dive into the genetics of Angelman syndrome, to understanding clinical treatments for treating seizures to discussions with IEP specialists and communication specialists, we are here to help as many families as possible on this journey. We are so glad you have joined us and look forward to connecting and supporting this community together.

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Avsnitt(42)

Epilepsy in Angelman Syndrome

Epilepsy in Angelman Syndrome

Share Your Feedback or Recommend New Topics In this episode, Dr. Mark Nespeca lays the groundwork by identifying and explaining the types of seizures commonly seen in individuals with Angelman syndrom...

17 Dec 202459min

Food is Medicine

Food is Medicine

Share Your Feedback or Recommend New TopicsPeople with Angelman syndrome demonstrate a higher than average response to dietary therapy. This podcast provides a better understanding of what dietary the...

10 Dec 202437min

Decision Fatigue to Peace with Lisa Jamieson

Decision Fatigue to Peace with Lisa Jamieson

Share Your Feedback or Recommend New Topics Angelman mom, Lisa Jamieson from Walk Right In Ministries, a faith-based organization that supports caregivers, joins CEO Amanda Moore to discuss Lisa's per...

26 Nov 202442min

Travel Tips

Travel Tips

Share Your Feedback or Recommend New TopicsGuest hosts AJ and Chloe Knouff are joined by Haily Green of Wondermakers Travel. They talk all things travel including planning, special considerations and ...

13 Nov 202430min

Top 10 Questions With Amanda Moore

Top 10 Questions With Amanda Moore

Share Your Feedback or Recommend New TopicsAmanda Moore, Angelman Syndrome Foundation CEO, shares the top 10 questions she is asked and how she answers those questions.+ + +Learn more about Angelman S...

30 Okt 202435min

Behavior and Anxiety in Angelman Syndrome

Behavior and Anxiety in Angelman Syndrome

Share Your Feedback or Recommend New Topics Christopher Keary, MD, Behavioral Director at the MGH Angelman Syndrome Clinic, and Cesar Ochoa-Lubinoff, MD, MPH, ASF Clinic Director at Cedars-Sinai, offe...

16 Okt 202448min

Miles For Smiles w Deanna McCurdy

Miles For Smiles w Deanna McCurdy

Share Your Feedback or Recommend New TopicsInspiring mother, advocate and runner, Deanna McCurdy, talks with CEO Amanda Moore about uniting her passion and purpose to create Team Miles for Smiles.+ + ...

3 Okt 202456min

Genotypes: A Conversation with Parents

Genotypes: A Conversation with Parents

Share Your Feedback or Recommend New TopicsASF CEO Amanda Moore talks with parents of individuals with AS about the various genotypes and their experiences with how each genotype presents. + + +Learn ...

19 Sep 20241h 7min

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