Angelman Syndrome Foundation Podcast

Angelman Syndrome Foundation Podcast

Welcome to the Angelman Syndrome Foundation community! In each episode, Amanda Moore, CEO of Angelman Syndrome Foundation, will discuss Angelman syndrome with experts in their field to provide resources and education to families. From a deep dive into the genetics of Angelman syndrome, to understanding clinical treatments for treating seizures to discussions with IEP specialists and communication specialists, we are here to help as many families as possible on this journey. We are so glad you have joined us and look forward to connecting and supporting this community together.

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Avsnitt(42)

Adults & Caregiver Support

Adults & Caregiver Support

Share Your Feedback or Recommend New TopicsParent of an 28-year-old daughter with Angelman syndrome, Robin Wilkerson discuss the importance of community and how to support adults.+ + +Learn more about...

18 Sep 202335min

An Interview With Angie Kim, Best-Selling Author

An Interview With Angie Kim, Best-Selling Author

Share Your Feedback or Recommend New TopicsNew York Times best-selling author Angie Kim discusses her new heart-wrenching thriller book "Happiness Falls" and the character Eugene who has Angelman synd...

29 Aug 20231h 4min

Seizure Control & Diet in AS

Seizure Control & Diet in AS

Share Your Feedback or Recommend New TopicsDiet is so important to controlling seizures individuals with AS. Learn more about the ketogenic diet from Mass General Hospital dietician Heidi Pfeifer.+ + ...

9 Aug 202331min

Financial Planning Q&A

Financial Planning Q&A

Share Your Feedback or Recommend New TopicsCaring and planning for the future of a family member with special needs is often overwhelming. Mary Anne Ehlert from Protected Tomorrows answers common fina...

25 Juli 20231h 34min

All Things Seizures

All Things Seizures

Share Your Feedback or Recommend New TopicsDr. Ron Thibert, ASF Clinician at Massachusetts General Hospital, discusses everything families need to know about seizures in Angelman syndrome.+ + +Learn m...

11 Juli 20231h 27min

AS Medical Care For All Ages

AS Medical Care For All Ages

Share Your Feedback or Recommend New TopicsIn this previously recorded conversation, listen to medical experts answer commonly asked questions about medical care.+ + +Learn more about Angelman Syndrom...

26 Juni 20231h 13min

Angelman Dads

Angelman Dads

Share Your Feedback or Recommend New TopicsFathers discuss everything there is to know about being a dad to a child with Angelman syndrome.+ + +Learn more about Angelman Syndrome Foundation at Angelma...

12 Juni 20231h 8min

Clinical Trials in AS

Clinical Trials in AS

Share Your Feedback or Recommend New TopicsIn this previously recorded conversation, listen to a Q&A moderated by Dr. Elizabeth Jalazo about exciting clinical trial news.+ + +Learn more about Angelman...

30 Maj 20231h 7min

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