We Are Single Caregivers
Share Your Feedback or Recommend New TopicsTwo single mothers of children with Angelman syndrome discuss what help looks like for them.+ + +Learn more about Angelman Syndrome Foundation at Angelman.or...
15 Maj 202334min
AS Clinical Experts Panel
Share Your Feedback or Recommend New TopicsIn this previously recorded webinar, listen to an "ask all, tell all" session with four Angelman syndrome clinical experts.+ + +Learn more about Angelman Syn...
1 Maj 20231h 22min
How Diet Therapy Saved My Son
Share Your Feedback or Recommend New TopicsParent Lizzie Sordia describes how the ketogenic diet eventually stopped her son's seizures. Learn more about Diet Therapy: Angelman.org/articles/diet-therap...
1 Dec 202210min
Newly Diagnosed 101
Share Your Feedback or Recommend New TopicsTwo mothers join Amanda to discuss their newly diagnosed journey and early signs of Angelman syndrome in their children.+ + + Learn more about Angelman Syndr...
31 Okt 202248min
Understanding Episodes of Myoclonus
Share Your Feedback or Recommend New TopicsASF Clinician Dr. Robert Carson discuss non-epileptic myoclonus, a movement disorder that presents itself with sudden, brief, shock-like jerks in individuals...
20 Okt 20221h 3min
Understanding Adults with AS
Share Your Feedback or Recommend New TopicsASF CEO Amanda Moore interviews Robin Wilkerson, parent of Paige, a 29-year-old with AS. Diagnosed at age 5, Robin discusses her family's journey and the uni...
11 Okt 202232min
Understanding The UBE3A Gene
Share Your Feedback or Recommend New TopicsASF Clinic Director Christian Hommes and Matt Judson from The Philpot Lab at UNC explain the complexities of UBE3A.* * *Learn more about Angelman Syndrome Fo...
3 Okt 202246min
Sibling Spotlight: Baden Moore
Share Your Feedback or Recommend New TopicsIn Episode 3, ASF CEO Amanda Moore interviews a special guest! Her 7-year-old son Baden explains first-hand what it's like being a twin sibling to his brothe...
26 Sep 202220min
