Rory Tallon, CF Ireland
Please consider subscribing, rating and commenting on our podcast (Spotify). But you can hear our podcasts anywhere.We’re traveling 9 hours by plane for this podcast to the lush green grass of Dublin,...
25 Sep 202348min
CF Warrior Asia Diaz. Late diagnosis. Delivers baby while suffering pneumonia.
Asia Diaz is 27 years old and has CF. As an African American woman she was one of the many people diagnosis late in her life because some physicians believe incorrectly, that CF is a genetic disease t...
18 Sep 202326min
Life without Trikafta, Will Corcoran (and Mom, "Bean")
Bean Corcoran, and Will Corcoran. Mother and son.I met Bean Corcoran when we were doing a science and innovation campaign, and we became friends! I learned a little bit about her son Will, who has C...
11 Sep 202334min
Night of Hope Keynote speaker, Jerry Cahill
If you want to meet Jerry in person, I encourage you to attend our Night of Hope Gala on September 9th. You’ll be able to talk with Jerry about anything that is on your heart. You’ll be so inspired,...
5 Sep 202332min
Durhane Wong-Reiger, expert on access in low income Countries
Dr. Durhane Wong-Rieger is the President and CEO for the Canadian Organization for Rare Disorders. She is involved and Chair to many committees and organizations. She is also an author, lecturer and t...
28 Aug 202350min
Rare Disease Advisory Council (RDAC) with Rep. Jason Morgan and Dr. Stephen Rapundalo
The Rare Disease Advisory Council, (RDAC) has passed in at least 25 states so far. This is a bi-partisan effort to give voice to people and their families who are living with a rare disease. We're t...
21 Aug 202330min
HealthWell Foundation - going out of the CF business?
Healthwell is a foundation that helps people pay bills that impact 90 different disease groups. They cover what insurance does not. The Bonnell Foundation will refer people to Healthwell when the fin...
14 Aug 202327min
Deliverer of CF Hope, Bob Emmelkamp
You will want to learn more about Bob Emmelkamp after this podcast, I promise!I feel like Bob is everywhere and supportive of everyone.Without a DNA connection to cystic fibrosis, Bob Emmelkamp became...
7 Aug 202349min
