Living With Cystic Fibrosis

Melodie Ramone and I met on Twitter, before the pandemic. Melodie was supporting all my posts and I wondered why, did she have a CF connection?  She was, as it turns out, supportive of the CF communit...

31 Juli 202335min

Who will want to take on a person with CF?  That is the question many women born with the disease think about after high school.Megan Bauer thought about it a lot. Until she met Alec.  At 26 years old...

17 Juli 202330min

The CF community is a small one. It’s made up of 40,000 people with the disease in the U.S.  When you add two parents to the mix that’s 80,000 parents, then there are grandparents, siblings, Aunt and ...

10 Juli 202349min

This is a love story about two people passionate about entertainment, writing and each other.In 2016 Clement ‘Clem’ Souyri, moved from Versaille, France to the United States. Clem is a lawyer who spec...

5 Juli 202334min

54 years ago when Canadian, Lisa Bentley was born, enzymes weren't even in pill form. Diagnosed at age 20, Lisa was already in the midst of figuring out her life as a teacher and later, a world famous...

26 Juni 202340min

CF in the family. ​Making it your life's purpose. Then The Crossing for cystic fibrosis, from the Bahamas to Florida was born. ​Travis' parents didn't know they had three children with CF. When Travis...

19 Juni 202349min

In January, The American Thoracic Society (ATS) held a webinar about the challenges facing CF families in low-income countries.  Drs. Samya Nasr and Grace Paul were key participants in the webinar. Tw...

12 Juni 202341min

The Live Fearlessly Foundation? It’s the creation of Jacob Venditti.  Jacob is a surfer and lover of life.  He's also a social impact entrepreneur, community builder, multimedia producer, keynote spea...

5 Juni 202321min