Dr. Caleb Bupp, Rare Genius (in our opinion)
Dr. Caleb Bupp. In my opinion. A scientific star. He is a most humble human, but has every right to brag, but he never would. I do believe he's a genius. You will love this podcast. We talk about r...
10 Jun 202443min
Cambrey Vasconez White - rare mutations
Cambrey Vasconez White is the mother of toddler Rowland, who has Cystic Fibrosis. If you listened to our podcast with Vicky Maldonado, they have similar struggles. Cambrey is also working to find an...
3 Jun 202438min
Brandi Berry, Chidlren's Special Health Care Services Prgrm
Did you know most states have programs for CF families, and they don’t have to do with your income? Michigan has one of the best programs in the Country. It’s called Children’s Special Healthcare and ...
27 Mai 202439min
Dr. Bhanu Jena, another CF modulator on the horizon?
A new CF modulator could be on the horizon. Professor Dr. Bhanu Jena is exciting to tell us all about it. Dr. Jena was born in a small town in Odisha, India. He got his love for science and medicine f...
20 Mai 202435min
The Final 10 percent
Approximately 10 percent of the CF population is waiting for a CF modulator drug that will help them by correcting the underlying condition of their disease. Current modulator drugs help more common ...
13 Mai 202438min
Dr. Mitch Drumm - CF Pioneer (and hero to CF community)
Living legends. One of them is Dr. Mitch Drumm. He was part of the team with Dr. Francis Collins who discovered the gene that cause CF. They were all at the University of Michigan. You’ll hear the con...
6 Mai 202444min
Dr Ryan Hadley - Lung Transplants
Do you know what is needed before you have a lung transplant? Or even how it works? More and more adult CF clinics are explaining the details to adult patients, but if you're a CF parent, there is a...
29 Apr 202427min
Laura and Beth talk about what makes a Foundation work!
Everyone always asks me "What does it take to run a Foundation?" So I thought I would explain some of the different aspects of funny and challenging parts of running a Foundation.Please join me with ...
22 Apr 202440min
