Touraj Manshadi falling through the gaps in health policy
We’re in Canada for this podcast. Canadian Advocate Beth Vanstone has two daughters, one with CF and she’s hosting this podcast with Laura Bonnell.Beth is introducing us to 32-year-old To Touraj Dehgh...
14 Okt 202436min
CURE FOUND MSU EXPANDS TO UM
I always tell this group of undergrad students that they are our future, and that makes the future look bright. Atef Choudhury and Naim Mashni are incredible people and students. They're both Seniors ...
7 Okt 202439min
Laura Bonnell - From news reporting, to CF and beyond.
From news reporting, to CF and beyond. Laura talks about her journey. The Bonnell Foundation: Living with cystic fibrosis is 14 years old. "I was so hopeful all those years ago, that my Foundation w...
30 Sep 202431min
Sorcha's CF journey: from diagnosis to addiction and discovery
We discuss suicide in this podcast. This could be a trigger for some for you. Please remember the National Suicide Hotline can be reached via text or by calling 988.Sorcha Slyvester-Martin from diagno...
23 Sep 202444min
My brother and me! Rare, a bit of CF & COTA!
In this podcast you'll meet my brother Noah Teicher, and my nephew Colton Teicher. I have two younger brothers, but my brother Noah (the middle child) has two boys who had a rare disease. And we talk ...
9 Sep 202441min
Diary of a Dying Girl, Diane (Mallory) Shader Smith
Diane Shader Smith’s daughter Mallory died from complications of cystic fibrosis 6 years ago. She was 25 years old. Diane initially published her daughter’s diary, "Salt in My Soul". This book gave i...
22 Jul 202427min
Special Insurance for CF families (and others) in MI
Children’s Special Health Care Services (CSHCS): Have you heard of it? In the simplest terms, it is defined by the need for specialty care required for your child. It’s not a Medicaid program. Access ...
15 Jul 202433min
Remembering Matt McCloskey of Take a Breather
Shortly after we did this podcast Matt died from complications of cystic fibrosis. With permission from his sisters, and dear friend Jennifer Bleecher (featured in this podcast) we are now airing thi...
24 Jun 202437min
