Melissa Yeager, Claire's Place Foundation
Melissa Yeager, Executive Director and Co-Founder of Claire’s Place FoundationSince the planning stages of Claire’s Place Foundation, Melissa has spent countless hours working for the cause and, of co...
16 Des 202444min
Rock Star, Emily Schaller: one on one.
Emily Schaller, 42, is a heroine with one goal in mind, to Rock CF.A lot of laughs on this podcast with my friend Emily! She talks about her health, the Foundation, new and old legislation and what's...
9 Des 202430min
Healthcare funds you could be eligible to get, but probably don't know about.
“Charity Care is the best kept secret in healthcare.” says Eli Rushbanks "Only 29 percent of the people who should be helped by 340B, are helped."If, like me, you have not heard about Charity Care or ...
2 Des 202435min
Rare Disease Ph.D. Beth Vanstone and Laura Bonnell
Are titles important? As a rare disease parent, we think you're worthy of a Ph.D. Listen to our fun conversation about all things rare and the much needed title we may need (or not) to get things don...
25 Nov 202427min
Private Patient Advocate offers you help
What is a Private Patient Advocate? Do you need one?Laura talks to Dr. Elena Borrelli who is a Doctor of Medical Science and a Board-Certified Patient Advocate who helps people and families with their...
18 Nov 202431min
Running a marathon with CF: Dylan Mortimer
Dylan Mortimer did the NYC Marathon. If you know him, you know that he had two double lung transplants. One in 2017 and one two years later in 2019.His second transplant was in NYC and Dylan talks abo...
11 Nov 202435min
Partnership to Improve Patient Care: legislation explained!
Patient rights: do you know about the rights you have in regard to healthcare? There is a lot of information for you that Sara and Thayer serve to you here, in terms you can understand. They both wor...
28 Okt 202443min
Heather Trammell: CF and finding your voice
Life with CF is different for everyone. We have a lot of the same challenges, but we do grow with the disease differently. Heather Trammell, CF Mom to 7 year old Charlie is married to Christopher, (f...
21 Okt 202437min
