Living With Cystic Fibrosis

Are titles important? As a rare disease parent, we think you're worthy of a Ph.D.  Listen to our fun conversation about all things rare and the much needed title we may need (or not) to get things don...

25 Nov 202427min

What is a Private Patient Advocate? Do you need one?Laura talks to Dr. Elena Borrelli who is a Doctor of Medical Science and a Board-Certified Patient Advocate who helps people and families with their...

18 Nov 202431min

Dylan Mortimer did the NYC Marathon. If you know him, you know that he had two double lung transplants. One in 2017 and one two years later in 2019.His second transplant was in NYC and Dylan talks abo...

11 Nov 202435min

Patient rights: do you know about the rights you have in regard to healthcare? There is a lot of information for you that Sara and Thayer serve to you here, in terms you can understand.  They both wor...

28 Okt 202443min

Life with CF is different for everyone. We have a lot of the same challenges, but we do grow with the disease differently.  Heather Trammell, CF Mom to 7 year old Charlie is married to Christopher, (f...

21 Okt 202437min

We’re in Canada for this podcast. Canadian Advocate Beth Vanstone has two daughters, one with CF and she’s hosting this podcast with Laura Bonnell.Beth is introducing us to 32-year-old To Touraj Dehgh...

14 Okt 202436min

I always tell this group of undergrad students that they are our future, and that makes the future look bright. Atef Choudhury and Naim Mashni are incredible people and students. They're both Seniors ...

7 Okt 202439min

From news reporting,  to CF and beyond.  Laura talks about her journey. The Bonnell Foundation: Living with cystic fibrosis is 14 years old. "I was so hopeful all those years ago, that my Foundation w...

30 Sep 202431min