Living With Cystic Fibrosis

Living With Cystic Fibrosis

Living with cystic fibrosis: the challenges and triumphs along the way. Live-Breathe-Inspire

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Episoder(209)

Aaron Trumm: living his best life!

Aaron Trumm: living his best life!

I love that I was able to bump into Aaron Trumm via an email.  He reached out to check in about our scholarship program for college.  We only award grants to undergrad students, but I was intrigued by...

24 Mar 202545min

Bob  Coughlin, CF Dad: from Congress to Science

Bob Coughlin, CF Dad: from Congress to Science

CF Dad Bob Coughlin see's a cure in the future for his son, and all of our kids. His high energy in this podcast is contagious. In this conversation, Laura Bonnell and Bob Coughlin discuss the journey...

10 Mar 202545min

Michael Armstrong, wise beyond his years

Michael Armstrong, wise beyond his years

Michael Armstrong is a 25-year-old pre-law student. He loves to read, paint, play card games and video games. He was diagnosed with CF as an infant. We’re going to talk about his CF journey and how li...

24 Feb 202526min

Life after the death of a child to CF

Life after the death of a child to CF

If you lose a child to CF, what does that do to parents? To their identity? And their place in the CF community.  These are hard discussions to have, but for a couple years now Peggy Hawkins has want ...

10 Feb 202542min

Advocate, Amanda Boone

Advocate, Amanda Boone

Saving yourself by way of advocacy. Living with cystic fibrosis podcast host, Laura Bonnell talks to CF advocate, Amanda Boone about the fight that grew from a threat to her medications in Colorado. A...

27 Jan 20251h 5min

BreatheStrong CF

BreatheStrong CF

I have known Becky Penuel for many years. Becky used to run Miles for cystic fibrosis and then merged her nonprofit with Brian Callanan’s nonprofit, CF Life Fitness. After the merger, the nonprofit na...

20 Jan 202544min

NonProfit Spot, Heather Carmona

NonProfit Spot, Heather Carmona

The NonProfit Spot: a wealth of resources and classes about how to grow your board, fundraise and make strategic decisions that will change the trajectory of your Foundation for the better.  They have...

13 Jan 202538min

Rare Disease Diversity, Jenifer Waldrop

Rare Disease Diversity, Jenifer Waldrop

I encourage everyone to attend conferences when you can. I meet the most interesting experts in the field of the nonprofit world. From scientists, to pharma, to other nonprofit execs like me. I was th...

6 Jan 202534min

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