Living With Cystic Fibrosis

Laura Bonnell, the Host of the Living with cystic fibrosis podcast, does a solo podcast this time around. This is her story, life without CF, diagnosis (here comes CF ready or not) and starting a Foun...

29 Mai 202340min

The CF Legal Information Hotline. A brilliant idea.  The woman who made it happen is 57 year old Beth Sufian, who has CF.Attorney Beth Sufian works just about around the clock helping and answering qu...

22 Mai 202343min

We need to education and come up with solutions to help the people of India with cystic fibrosis.  Facts of CF in India:There are 40,000 people diagnosed with CF in the U.S. and 70,000 worldwide, but ...

15 Mai 20231h 6min

It's 2023, surely now people of color are correctly being diagnosed with cystic fibrosis right?  Nope.  They are still underdiagnosed.  We hear about it happening in low income countries, but it's hap...

8 Mai 202340min

The CF community is a small, tight knit group.  There are 40-thousand patients with CF in the U.S., and double the amount of parents. many of us in the CF community know each other, or have heard of o...

1 Mai 202335min

People getting married who have CF. We don’t hear it happening very often.  We’ve always been told that people with CF should not be in the same room, unless they are 6 feet apart.  This is impossible...

6 Mar 202343min

Does your CF clinic offer a place for you to express your concerns and successes about CF?  The University of Michigan Medical Center started a zoom program during the pandemic that allowed its adult ...

27 Feb 202329min

Imagine having children with CF and living in another country.  In your country they don't have any CF medications, and maybe only a handful of people have been diagnosed with the disease.  Even testi...

20 Feb 202339min