Living With Cystic Fibrosis

Indubious. Live Indubiously. Indubians. What am I talking about?  The band Indubious was founded by two brothers, 38 years old Evan Burton and 41 year old Skip Burton.  Both happen to have CF.  They r...

13 Feb 202341min

Almost everyone in the CF community knows who Andy Lipman is and all the contributions he has made. Andy, and his older sister Wendy were born with cystic fibrosis.  Wendy died when she was only 16 da...

6 Feb 202336min

Dr. Harutai Kamalaporn sees 12 of the 30 patients diagnosed with CF in Thailand.  The challenges she faces are: lack of medications, equipment and sweat chloride tests at all three hospitals.  Dr. Kam...

30 Jan 202330min

If you are taking one of Vertex’s medications, you may be aware that the GPS program at Vertex recently made changes to its co-pay assistance program. In September of 2022, a patient advocate at Verte...

23 Jan 202335min

19 year old Atef Choudhury and 18 year old Naim Mashni are both sophomores at MSU, and they have found their voice.  Atef has a nephew with CF and that is what made him want to start to raise awarenes...

16 Jan 202321min

Did you know your child should visit a pediatric dentist? Did you know that people with CF generally have better dental health than the rest of the general population? Are you familiar with a toothbru...

9 Jan 202339min

Not everyone with CF enjoys the same level of care.  Tragically it depends where you live.  Some countries don’t even recognize the disease. If a country doesn’t recognize CF, that means medications a...

2 Jan 202335min

Attorney Jen Weber is 49 years old and waiting to have her third lung transplant. Weber lived in Indiana until this third transplant, when she had to move to Durham, North Carolina to be near her tran...

5 Des 202228min